Current Issues

	COVID-19 Advocacy Resources Even during this pandemic, MDA won’t stop advocating for the neuromuscular disease community. Policies, regulations, and events on Capitol Hill are changing every day. Check out the latest on the federal government’s response to COVID-19 and how policies are affecting those with neuromuscular disease. Continue reading →
	Pompe Disease Patient-Focused Drug Development Meeting This meeting offers individuals with Pompe and their loved ones an opportunity to inform the FDA, drug developers, and other key stakeholders on the daily experiences of living with Pompe disease and how they view the benefits and risks of treatments for Pompe. Continue reading →
	Increase Federal Funding for Research Ensuring a robust stream of biomedical research funding is key to finding treatments and cures for neuromuscular diseases. MDA is committed to directly funding neuromuscular disease research and to advocating for increased federal funding for research. Continue reading →
	Health Care Reform Learn more about the importance of keeping key safeguards in place as health care reform is considered. Continue reading →
	Accessible Air Travel Learn more about the Air Carrier Access Act (ACAA) and civil rights for disabled passengers. Continue reading →
	Newborn Screening & Early Intervention MDA is committed to promoting policies and programs that move newborn screening forward for neuromuscular disorders - which is why MDA is engaged in multiple efforts support this public health program. Continue reading →
	Patient Focused Drug Development Learn more about the Food and Drug Administration's Patient Focused Drug Development initiative. Continue reading →
	ABLE Act: Changing the Financial Landscape for Many with Disabilities Learn more about the ABLE Act, ABLE accounts, and new legislation that would expand the benefits of, and increase access to, ABLE savings accounts. Continue reading →
	Complex Rehabilitative Technologies ("CRT") Protecting access to complex rehab wheelchairs and accessories.Continue reading →
	ALS Disability Insurance Access Act Legislation that would ensure faster access to benefits for those living with ALS by eliminating the five-month Social Security Disability waiting period. Continue reading →
	ADA Information Center Learn more about the Americans with Disabilities Act (ADA) and how this important legislation impacts employment, accommodations, and other important areas.Continue reading →
	MDA Advocacy Statements and Communications to Policy Makers Learn more about MDA's communication with policy makers. Continue reading →