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2021 is our year to pass the Huntington's Disease Parity Act. Take a minute to look over our social media advocacy resources below. To increase your impact: 

 

1. Share one of the videos below to Facebook, Twitter or Instagram to help people understand the real impact of Huntington's disease 

2. Use one of the scripts below to engage friends and families to take action and help us pass the Huntington's Disease Parity Act 

3. Use one of the scripts below to engage your Members of Congress on social media 

Social Media Toolkit

 


 

 

SAMPLE SCRIPTS FOR SOCIAL MEDIA POSTS

Posts to Engage friends and family: 

1.  You've heard of ALS, Parkinson's and Alzheimer's, but do you know HD? The Huntington’s Disease Parity Act will waive the 2 year Medicare waiting period. Two years is too long for HD families to wait. To make a difference in your community, visit HDSA.ORG/TAKEACTION #117thCongress #HDParityAct

 

2. Do you know about HD? For families like mine, this is what HD looks like in our lives. Take a minute to watch the video, and if you want to make a difference for families impacted by Huntington's disease, go to www.hdsa.org/takeaction today! #117thCongress #HDParity 

 

3. HD is the quintessential family disease, and for families like this, 2 years is too long to wait to access Medicare. Take a minute to watch the video, and help us make a difference for families impacted by Huntington's disease by going to www.hdsa.org/takeaction and sending a message today! #117thCongress #HDParityAct

 

Posts to Engage Members of Congress: 

1.  Hi, I'm from (city, state). [@Tag Member of Congress], we need your help. You've heard of ALS, Parkinson's and Alzheimer's, but do you know HD? The Huntington's Disease Parity Act will waive the 2 year Medicare waiting period for folks with HD. Two years is Too long for HD families to wait. Become an original cosponsor of the HD Parity Act Today #117thCongress #HDParityAct 

 

2. [@Tag Members of Congress] families with Huntington's disease need your help. You know about ALS, Alzheimer's and Parkinsons, you need to know about HD. The HD Parity Act will waive the 2 year medicare waiting period for folks with HD. For families like this, 2 years is too long. Become an original cosponsor of the HD Parity Act today #HDParityAct #117thCongress


Each Member of Congress has an information page where you can find their social media handles for platforms like Twitter, Facebook and Instagram

 

 

 

 

Advocacy Videos to Share

VIDEOS FOR SOCIAL MEDIA

HDSA has created a series of video clips showing the real impact of Huntington’s disease. Share a video clip from the playlist above with one of the scripts above and use the hashtags #117thCongress and #HDParityAct! 

 

Tag Your Members of Congress in Social Media Posts

In your post, don’t forget to tag your Members of Congress! Each Senator and Representative has social media accounts on Facebook, Twitter and Instagram. Make sure they see your post by tagging them! 

 

Not sure who your Members of Congress are? Find out below! 

 

Enter a name, address or zip code to find your officials or candidates.

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Contact Us

800-345-HDSA
888-HDSA-506 (Helpline)
hdsainfo@hdsa.org
505 Eighth Avenue Suite 902
New York, NY 10018
www.hdsa.org