In 2000, the General Assembly revised Title 33 and made people with developmental disabilities eligible for services, effective March 2002. Despite this change no funding has been allocated and no new services have been developed. A 2007 report of a Developmental Disabilities Task Force, established by the General Assembly, recommended expanding the Family Support program, establishing a Medicaid HCBS waiver, and establishing a personal assistance program for those who are not Medicaid eligible.
There are over 7,000 Tennesseans with intellectual disabilities on the waiting list for services through the Tennessee Department of Intellectual and Developmental Disabilities. Of those, 61% are adults living at home, 36% are children. An average of 54 people join the list each month- an average of 19 are accepted into services. Only those in "crisis" are eligible for the few "slots" that open up. The current system spends roughly $800 million dollars on 8,500 people in three waivers and ICFs/MR.