What's new in advocacy? AAFA works each day to ensure that the voices of the asthma and allergy communities are being heard. You can follow our advocacy efforts by checking our latest positions and statements, or learn more about recent advocacy activities below.
National Academy of Medicine (NAM) Releases Report, Finding a Path to Safety in Food Allergy: Assessment of the Global Burden, Causes, Prevention, Management, and Public Policy
The Asthma and Allergy Foundation of America (AAFA) was one of 11 co-sponsor for a National Academies of Sciences, Engineering, and Medicine a report, Finding a Path to Safety in Food Allergy: Assessment of the Global Burden, Causes, Prevention, Management, and Public Policy. The report recommends ways to increase our understanding of and approaches to food allergies. The report highlights that food allergy is a significant public health issue, and makes recommendations to increase public safety regarding food allergy and to improve the quality of life for those with food allergies. Recommendations also identify improvements that are needed in various settings, especially food establishments; child care, education; and the travel industry. Information about the project and a copy of the report can be found at: https://www.nationalacademies.org/hmd/Activities/Nutrition/FoodAllergies.aspx
To listen to a recording of the release webinar of the report, please visit: http://nationalacademies.org/hmd/Activities/Nutrition/FoodAllergies/2016-NOV-30.aspx
For more information and materials on this report, please visit: http://nationalacademies.org/hmd/reports/2016/finding-a-path-to-safety-in-food-allergy.aspx
AAFA Participates in Roundtable to Address Value in Patient Care
June 23, 2016 - AAFA's President and CEO, Dr. Cary Sennett, participated in an expert roundtable convened by the Partnership to Improve Patient Care (PIPC). The roundtable addressed the issue of how we measure "value" in healthcare, and how we can make healthcare more patient-centered. Read the Roundtable report to learn more about this important patient issue.
AAFA Co-Sponsors Briefing on Asthma and Allergy Research
May 13, 2016 - In honor of Asthma and Allergy Awareness Month, AAFA co-sponsored a Congressional briefing From Discovery to Delivery: Research at Work Against Allergies and Asthma. The event featured a panel of doctors, patients, and researchers who spoke about the importance of clinical research to improve medical care and quality of life for those with asthma and allergies.
To learn more about clinical research, asthma, and allergies, please see the resources below:
Asthma and Allergy Awareness Month Blog
May 4, 2016 - May is Asthma and Allergy Awareness Month. To mark the occasion, AAFA's Vice President of Policy, Advocacy, and Research, Meryl Bloomrosen, guest-authored a blog on BioTechNow. Take a look!
AAFA Joins Medicare Advantage Care Coordination Task Force
March 31, 2016 - Earlier this year, AAFA joined the Medicare Advantage Care Coordination (MACC) Task Force, a joint effort with other patient and health organizations. The MACC Task Force campaign aims to identify and raise awareness around the best ways to coordinate care and treatment for Medicare beneficiaries, who often have more than one chronic condition. Learn more about this project.
AAFA CEO Addresses Allergy Shot Regulations
March 7, 2016 - AAFA's President and CEO, Dr. Cary Sennett, spoke about proposed changes to immunotherapy (allergy shots) regulations at the American Academy of Allergy, Asthma, and Immunology (AAAAI) annual meeting in Los Angeles. Regulations proposed by the United States Pharmacopeia (USP) may restrict the availability of asthma shots for many patients. Dr. Sennett expressed AAFA's concerns about limiting patient access to an important treatment, and urged the USP to leave the current regulations in place.
To learn more about this issue, visit our blog and read a copy of Dr. Sennett's remarks at the AAAAI meeting.
AAFA Presents at FDA Meeting on Diversity in Clinical Trials
February 29, 2016 - AAFA's Senior Vice President of Policy, Advocacy, and Research, Meryl Bloomrosen, presented at a public meeting at the FDA today on the importance of diversity in clinical trials and involving patients in research. Her remarks to the FDA highlighted the patient community's need for safer and more effective treatments. Read a copy of AAFA's remarks.
AAFA Addresses Amtrak's New "Pets on Trains" Policy
February 22, 2016 - When AAFA learned that Amtrak was testing a pilot program to allow pets on trains, we were concerned about the impact such a program might have on those with asthma and allergies. We wrote a letter to Amtrak expressing concerns on behalf of the asthma and allergy community, and received a response from Amtrak leadership that promises to give AAFA's concerns "serious consideration going forward."
Learn more about AAFA's letter to Amtrak on our blog.
January 29, 2016 - Proposed regulations introduced by the United States Pharmacopeia (USP) could dramatically limit patient access to allergen immunotherapy (allergy shots). Allergy shots are an important treatment that has improved the quality of life for many allergy patients, and we believe the proposed restrictions will severely limit patient access to immunotherapy. AAFA submitted comments to the USP urging them to leave the current regulations in place.
Learn more about how you can defend access to allergy shots.